The progressive nature of its course and the accompanying concern about prognosis: The fear to the unknown, to what tomorrow is going to be like is a normal fear for regular folks, but for those of us living with MS it can be much worse and very disruptive and even dangerous.
This is often the first big question brought to discussions about Multiple Sclerosis by the newly diagnosed:
Questions like these cause a great deal of concern, made worse by the fact that there are no clear answers.
For many, a clear diagnosis of MS takes many years. For others, the diagnosis comes with many unpleasant, intrusive, and potentially painful medical tests, each of which causes distress and worries of their own.
For those of us that have received a definite diagnosis, the doubts and fear appears whenever a new symptom emerges. This can cause fear or panic. What does this new symptom mean? How long will it last? Will it get worse? Will it be permanent? A single new, perhaps even innocent symptom can trigger a flood of old anxieties. Will I be able to keep working? Can I support my family? Will I be able to walk? Is this the symptom that signals a drastic worsening of this disease?
The truth is that, being diagnosed with Multiple Sclerosis brings fear to the fore, harboring the anticipation of negative events.
ANXIETY CAN BE A VALUABLE SIGNAL
I went out in the heat to look at the progress of a construction we are building next to our home for a few minutes the other day. I was nervous about doing so because the kind of MS fatigue I have carries over into the next day if I do too much. While I was outside, my wife was next to me. I was hot, but it was initially pleasant.
Then I stumbled slightly and my nervousness began. My wife made a comment saying that I probably shouldn't be out in the heat. I remained looking at the progress but my apprehension worsened and I started thinking "you shouldn't be doing this." "It's too much for you." Finally when my knees started notably wobbling after about 20 minutes, I listened to my body and went back to our home to put on my cooling vest.
The nervousness felt and the flood of warning thoughts is often a signal to tell us something is wrong. When we know what the signal means and listen to it, anxiety serves an important function. If we are nervous about a meeting, we will prepare more for it, or we will increase attention and concentration to pay attention to hints we could have missed in a relaxed state.
SIMPLE WAYS TO MANAGE ANXIETY
- Develop a plan to manage your particular type of MS: For example, learning how to deal with MS fatigue effectively is a particularly helpful way to keep these feelings and thoughts at bay
- Getting the most information about the disease and understanding it as best you can is a good start to keep these worries reasonable and within bounds.
Knowledge is power = more control = less fretfulness
- Talking to people close to you should also help. Especially, talking to other MSers is a great way to reduce your fears.
- Finding a team of trusted professionals to monitor and provide care for the illness and its symptoms can also go a long way in reducing painful fears and concerns.
DON'T IGNORE MORE SERIOUS SIGNS OF UNEASINESS
Sometimes it can get out of control. Someone with an intense fear of relapse can live in constant dread of the next returning symptoms.
Staying too long in a state of worry can cause:
- Serious digestive problems
- Muscle aches
- Other discomforts such as MS headaches and other MS symptoms can get worse.
- It can make us irritable and interfere with our ability to relate comfortably with friends and family who are important to us.
- Finally, it can paralyze us.
MEDICAL SYMPTOMS THAT CAN COME FROM ANXIETY:
- Palpitations
- Pounding heart
- Accelerated heart rate
- Sweating
- Trembling, shaking
- Shortness of breath
- Feeling of choking
- Chest pain or discomfort
- Nausea or abdominal distress
- Dizziness
- Unsteadiness
- Feeling lightheaded or faint
Important: Panic attacks and other forms of distress often produce symptoms very much like those of Multiple Sclerosis: symptoms such as numbness or tingling sensations for example.
When these symptoms show up, it is important to consult your doctor. If no physical cause is found and it is thought to be the result of nervousness or concern, treatment by a mental health professional should be consider.
Symptoms range from a concern that reflects a period of adjustment and is expected to resolve with support and time, to more serious disorders like obsessive-compulsive disorder that can be lifelong and debilitating.
Those of us with Multiple Sclerosis are not immune to any one of these disorders, but often our anxiety falls into the category of adjustment, or the exacerbation of agoraphobic or social phobias that may be exaggerated because of the life changing conditions of our particular type of MS.
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